- Saturday, February 25, 2023
- 9:00 AM–2:00 PM
- Prince Conference Center
- FREE
An event hosted by the Rare Disease Network for patients, caregivers, medical professionals, advocates, and students that will explore What's Next in rare disease research and treatment, mental health care for patients and caregivers, and rare-disease focused careers.
The Rare Disease Network will host its 4th annual Rare Disease Day Gathering on Saturday, February 25, 2023 at the Prince Conference Center on Calvin University’s campus.
This free event aims to unite patients, caregivers and families, medical professionals, researchers, advocates, and students around the common goals of sharing knowledge and insights about rare diseases and being rare and encouraging and supporting one another.
The theme for this year’s gathering is What’s Next? Featured keynote speakers will address what’s next in rare disease research and treatment and what’s next in supporting the mental health of patients and caregivers. Breakout sessions will provide opportunities to discuss what’s next for parents of newly diagnosed children facing significant medical expenses and what’s next for students interested in pursuing rare disease-focused careers, among other topics.
The event, beginning at 9:00 am and ending at 2:00 pm, will include lunch. In addition to hearing from keynote speakers and attending breakout sessions, participants will have the opportunity to engage with one another and visit information tables hosted by various advocacy and service organizations.
Registration
The registration deadline has passed.
